Ir al contenido principal

spoons & batteries

Sometimes i wake up with that terrible backache...Those that appear when i can't sleep at night. I don't have energy, but the pain keeps me from sleeping. 

My mum tells me to clean my room. I tell her i'm out of spoons. She doesn't understand.

But, what are spoons, in this case? Basically, it's something coined by Christine Miserandino, a waitress with lupus, who had the idea to illustrate, via (first encountered, literally) physical objects, the energy loss that chronically ill people face day by day. Still, some, because of the complex theory, prefer to explain it via battery. But spoons are more popular within each passing day.

Not only chronically ill people lose spoons quickly. Mentally ill people do too, specially if their mood gets low because of some reason. 
i'll show you a day in my life.

Firstly, i have 30 spoons. It's a terrific day, one that i hardly ever have. Almost a miracle.

1.- i wake up. Let's suppose it's Saturday. I habe to choose what to have for breakfast, and if i want to go to my Father's Ministry (which  is early morning, so it's kinda tiring). Let's say i do go. Choosing under pressure, changes  in  routine, and going from house to house (even if it's to talk with the Church's disabled members) makes me tired. now i just have 20 spoons.

2.-I go home and do my homework. Investigation, and then checking  social media WASTE 11 SPOONS. I just have  DANGEROUS 9.

3.- I go eating with my grandma, people fight, but, thanks to my marvelous headphones, i still have... 3 SPOONS.

4.- NOW, THE HARDEST CHOICE: GOING TO YOUTH MINISTRY, OR STAY HOME? I CHOOSE YES... AND NOW, I JUST HAVE ONE SPOON. KEY TO SLEEP. I RETURN HOME NEEDING TO USE THE BATHROOM URGENTLY, AND WITH BACK PAIN. I EAT A BANANA, AND  GO TO SLEEP, THINKING "TOMORROW WILL BE ANOTHER DAY".

UGLIEST PART OF THIS, IS: ONLY NAPS CAN RECHARGE YOU. IF, OF COURSE, YOU AREN'T WRECKED BY SADNESS OR PAIN. OR BOTH. THAT'S MY LIFE WITH SPOONS, OH YES. NOW I JUST HAVE 5 SPOONS, FROM THE MATH AND WRITING. I'LL EAT PIZZA AND GO TO SLEEP.




Comentarios

Publicar un comentario

Entradas más populares de este blog

15 Reasons to NOT support Autism $peaks.

Well... this post is important… I know it will be highly polemical… But it's necessary. And now that i've got the spoons (we'll talk about it later) to tell it, i will. Unfrtunately for the big mayority of the Autistic Community, Autism $peaks is the greatest Autism Charity in the USA. MOST OF US HATE THIS "CHARITY". And here are a few reasons you should NEVER support them. 1. They show Autistic kids as burdens to their families, as "ghosts" and other REALLY STIGMATIZING analogies. No kid deserves that kind of rethoric (they have even described us as monsters). Even non-vocalizing or COMORBIDLY intellectually disabled Autistics are people and JUST BECAUSE OF THAT deserve as much respect as EVERYONE ELSE. 2. They use functioning labels. Simply, FUNCTIONING LABELS DON'T WORK. Due to them, "low functioning" individuals (commonly those who are non-vocalizing or depend on someone due to COMORBITIES)  are pitied, while "high-functionin...
Publicar un comentario
Leer más

Enough, apologize with Entrapta

 We've talked about how She-Ra gives us hope, about how Catra is a victim of multiple abuse...  Now, we'll talk abou that princess who redeemed an intergalactic conqueror with her love... That princess who, behin her ethically grey actions, hid a great desire of being apreciated with all and her diferences... Yes... Today, we'll talk about our dear Entrapta. I think she's the best Autistic rep until now. They even got an Autistic writer for her.  She is a somewhat lonely girl, a tech lover, but... she isn't that good with people.  And that's when Hordak comes along. He also feels like a failure, knowing he'll be euthanized becausae of his nerve damage. She's the first to understand what he feels like, BECAUSE SHE'S BEEN TREATED LIKE THAT. I MEAN, THEY PUT HER ON A LEASH. That's how they develop a relationship, between two souls sharing Ableist Discrimination and love for tech.  Many raise eyebrows at this relationship. They think: How could a wom...
Publicar un comentario
Leer más

El que calla NO siempre otorga: Sobre la intimidad forzada y tu gran afán de saber de mi vida privada

 Tw: Capacitismo, familia, autolesión, eugenesia, misoginia, ecofascismo, pedofilia, problemas del colon, mayúsculas.  He visto miles de posts de gente que va más avanzada en sus procesos de dieta Apta Para Veganos (APV), en los que se pregunta a toda la demás gente: "Oye, ¿Por qué no te cambias a dieta APV?".  Y entonces digo: "Aquí vamos de nuevo". ES POR MIS PROBLEMAS DEL COLON. Y POR MIS MEDICAMENTOS QUE NO PRETENDO MEZCLAR CON SUPLEMENTOS.  Y POR OTRAS COSAS DE LAS CUALES NO TE TIENES QUE ENTERAR FORZOSAMENTE.  Muchas veces a la gente Discapacitada se nos pide revelar información que NOS INCOMODA MUCHO REVELAR. *Las adecuaciones que necesitamos, incluyendo sus razones y si sabemos sus pros y contras. *Sobre nuestros síntomas incómodos (autolesiones, incontinencia, tics verbales) *Sobre nuestras situaciones familiares/sexuales/románticas *Sobre el origen de nuestra discapacidad, Y SI ES PREVENIBLE. Entre muuuuchas otras cosas.  Mucha gente puede venir y...
3 comentarios
Leer más