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Mostrando las entradas de junio, 2020

Presume Competence. Always.

I've spoken (will translate) about AAC, which can be good tools for your child.  But presuming competence goes further than that... What does it mean, on first instance? PRESUMING THAT THE PERSON CAN AND WANTS TO LEARN, PRESUMING THE NOTION THAT YOU JUST MIGHT NEED TO CHANGE YOUR METHODS. PRESUMING THAT THERE MAY BE LOTS OF THINGS IN THEIR MIND, BUT, WITH THE PROPOSED METHOD, THEY JUST CAN'T GET THEM ACROSS. WHAT I SAY IS... IF COUGHING DIDN'T WORK, USE HEIMLICH (MORE EXTRAVAGANT METHODS)! EVERYTHING COUNTS!  Presume that your child can communicate. Talk even of things you've never imagined (insert pronoun) speaking about.  Presume that (insert pronouns) has an opinion about politics, (insert pronoun) diagnosis, religion, sexuality. Presume that your child's talent is there, hidden, waiting to be discovered. Presume that your child loves you, and tels you in different ways. Presume that your CHILD WANTS AND WILL FIGHT FOR (insert pronouns) RIGHTS, YOU ONLY HAVE TO H...

Autism isn't an accesory... I don't "have autism"

They make polls. MANY OF THEM. Autistic, or Person with Autism? The majority of the community prefers the first one. You may say "It's only syntaxis!", and it may look like it is, but, in the community, saying we're Autistic is much more than that.  For the community, it means growing pride. Symbol of the full acceptance of our neurotype, even with the challenges this, or other commorbilities, may carry.  It's the symbol that means that we DON't want a cure, we just want acceptance. Symbol of wanting society to acommodate for us, because, indeed, we can't do all alone.  You could say "Autism doesn't define you!"But, truth is, why wouldn't it?  Everything I do, I do it as an Autistic. I wake up Autistic I sleep as Autistic I eat as an Autistic I shower as an Autistic I watch my favourite movies as an Autistic I cosplay (I do it, and i Love it) as an Autistic My work  is done the Autistic way You don't call a Jewish person "Person ...

"You don't look Autistic" ISN'T a compliment

"You are too pretty to be Autistic" "But... You speak!" "You look really normal"... "Sure?" They've told me all this when i tell them I'm Autistic. But I DON'T THINK THAT AUTISM HAS A PARTICULAR LOOK. There's people, like Amy Sequenzia, who HAVE COMORBID CONDITIONS, whih are easily noticeable,  in her case, for example, it's brain palsy. She is also nonspeaking, and types (slowly, but fiercely) to communicate. There's others with no visible commorbilities, like me. I'm one of them, i speak (only 1 out of 5 does not), don't have intellectual disability, and not many believe i'm Autistic. Amy is believed, of course, but they can't understand what they're seeing is her commorbilities. But of course, if i hand-flap, or talk a lot about a topic, then you could believe it, right? But, honestly, why do i have to prove my identity? I  have the privilege of a formal diagnosis, and even if i didn't, I HAVE AL...

¿Por qué se necesita el Orgullo Autista?

Avisito: Tengo una pequeña encuesta, por si gustan responder y compartir: https://getfoureyes.com/s/edY0h/ Es un poco tarde para este pequeño artículo, sin embargo, creo que es algo importantísimo, los 365 días del año. Cada dos de abril, Autism $peaks, organización de la que ya hablé,y que no hace más que apropiarse de las voces sobre el autismo y estigmatizar la condición, habla de nosotrxs sin nosotrxs. Es frustrante, pues se apropian de voces que no son suyas para sembrar el miedo y cizaña.  Por eso, el mismo año, Aspies for Freedom decidió que el 18 de junio retomaríamos el espacio que nos pertenece como comunidad. Y ESO FUE LO QUE HICIMOS. Ya me dirán "¿Pero cómo puede estar orgullosx mu hijx que no habla?" PRESUME SU COMPETENCIA, tengo un artículo de eso, búscalo como buena madre. Tener un cerebro diferente NO es malo. LO MALO ES EL SISTEMA QUE MUCHAS VECES NOS TRATA COMO BASURA. Y POR ESO, EL 18 DE JUNIO NOS REBELAMOS. SI VIENES A LA COMUNIDAD AUTISTA, SABRÁS QUE SOMO...

Sentires de Cuarentena

La cuarentena vino, y no se ha ido. A mucha gente le ha gustado, a otra no.  En cuánto a mí, fue una bendición inesperada, a pesar de que sé que es un privilegio enorme el decirlo. En cuanto cerraron la escuela, supe que ya no iba a lidiar con gente ruidosa que no comparte mi cerebro. Maestrxs que no presumen mi competencia (ya he hablado de eso) Compañerxs de equipo que me exigen demasiado, o muy poco. Hermanas que sutilmente ven con malos ojos la diversidad religiosa. Instalaciones antihigiénicas, antiguas, y algo escalofriantes. Y, a decir verdad, he hecho bastantes cosas que nunca pensé hacer: *Aprendí más sobre la diversidad humana *Mi autoestima se alzó *Intenté nuevas cosas, desde ver nuevas series, preparar nuevas recetas, descargar nuevos juegos, intentar nuevas combinaciones de ropa, aprender distintas cosas (descargué más de 50 libros, y tengo una libreta entera de apuntes de distintas pláticas), plantar varias cosas, hacer nuevas rutinas de ejercicios, tratar de mejorar...

Dear Alison Tepper Singer

Dear Alison Tepper Singer: I write your name. Anyways, THE WORLD NEEDS TO KNOW WHAT YOU'VE DONE. 15 years ago, in an Autism $peaks video,  you talked about THROWING YOUR CAR OVER A BRIDGE, WITH YOU AND YOUR NON-SPEAKING DAUGHTER, JODIE, INSIDE.  BELIEVE IT OR NOT, SHE HEARD YOU. AT THE END OF THE VIDEO, MANY HEARD HER CRY.  THE FACT THAT JODIE IS NON-SPEAKING DOESN'T MEAN SHE IS NON-UNDERSTANDING. You'll ask yourself, then, why your daughter can't study in "normal" schools. THE TRUTH IS: SHE SHOULD, WITH THE RIGHT ACOMMODATIONS. NOT WANTING TO PROVIDE FOR HER GOES AGAINST HER RIGHTS. MEANWHILE, YOU MAKE JODIE LOOK LIKE THE "BAD GIRL" IN THE STORY, WHEN SHE DOESN'T DESERVE THAT, OR THE MISTREATMENT YOU'VE DONE TO HER. SHE WAS IN THE ROOM WITH YOU... AND YOU REVEALED EVEN HER MOST PERSONAL DATA. YOU SAY YOU SEEK FOR HELP... AND YOU DO, OF COURSE, UNLESS IT'S FROM THE AUTISTIC COMMUNITY. YOU COULD SAY YOU'RE IN AUTISM $PEAKS NO LONGER, B...